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ECHSA Congenital Database - Data Verification Form, XXX 2014 Piu.lcut local ID Paticnł. Jocal ID 1011869705 1008679507 XXX_l974 Dato of blrth V 2014-11-19 V Dac ,c of a<l1ni$8iOn 2014-11-19 Dat.I! uf surgery \) 2014-11-25 V Dat.tJ of di�churgo 2014-12-02 3.'ył(g Cuso c·H.tcgory 1� CPB CPB Time 320.0 AoX Thnc 149.0 Dato or de!ath 2014-12-02 IPPV 180:00:00 Vtllida tion Ru les OK v u V v � 0J')<1rn.,.ion IO XXX_l992 XXX_l991 Datc of birth \) 2010-04-02 Dl'l.tc or a.dmlKslon V 2014-11-25 Da.te of su.rgcry 2014-11-26 Dato of diddmrgo 2014-11-30 W(•ight. 15 kg Csl'l-0 cn1.cgc.,ry ECMO i/ u V 'v CPO Time 2014-11-30 IPPV 90:00:00 Validation Rulo.s OK Hypoplrjic left (HLHS) syndror 1) 2. Vascular ring 2) 1. Norwoo� procedure scular ring (prio. 1) 2. repair (prio. 2) 3. ECMO cannulation (prio. 3) Prr,c(i<l11rc� ls wrrnct v hl nuL corr<:c:t ( x) \J DMo of dl•clrnrgo 2014-11-30 VVcight 15 kg C1L"\c cu t.ogory CPB CPB Timo IJ IPPV 105:00:00 Validation Jlnlrs OK I• vtllld? OK left plastic 1. y dromc (HLHS) łicart w 2. Patent <luc(prio. tus arteriosus (prio. 2) ASD, 3. Secundum (prio. 3) 4. Coarctation of aorta (prio. 4) 5. Aortic arch hypoplasia (prio. 5) Proc..:cdun.i:s 1. EC� (prio. 1) V V 2014-11-26 2014-11-30 Diagno�c:s h c:orr„ct, Datn o( �11rgory u cannulation 1, UOI, Mrr<Jct ( x) o,.,__ u V V t) left Hypopl t·c 1. (IILHS) heart syndro (prio. 1) 2. Patent ductus arteriosus (prio. 2) ASD, 3. Secundum (prio. 3) 4. Coarctation of aorta (prio. 4) 5. Aortic arch hypoplasia (prio. 5) Prot,;cdurcH Font 1. TCPC, External c� uit, Fen estra.ted (prio. 1) 2. ASD creation/ enlargement (prio. 2) I• com:ct ( ,/) V 99 lJ v Dat,c of death OK Diagnoscs VlJ 2010-04-02 0Mo of •rlmiMion 2014-11-25 AoX Timo Is va.li<I? OK DHte of hirth 159.0 AoX Timo l)atę of deat,h I• valld? 1. heart (prio. (prio. 1008679507 Qpcr•t,ion ID Operntion JO Wcig:ht. Pr1.tięnt loca.I ID Is nc.>t corr(:Ct (X) 99 EC HSA C ongenital Database - Data Verification Form, XXX 2014 Paticnt locl\l ID Pntlont loc;aJ ID PM.icnt loca.I IO 1011869705 1011843300 Or,crntion ID Operat.ion ID Opcration ID XXX_2005 XXX-1975 XXX_l972 1004464870 Doto of blrth 2003-02-06 Oate of acimi�sion 2014-11-27 OnLu ,,r 2u1rgcry 2014-11-27 \) V V ;�i;_;�:i VryJ Wclght V 55 kg Case catcgory CPB V CPB 'l'lntr, 322.0 \) AnX Time• 139.0 Oat<i of clcat.h 7o(0:00 Vallda.Lion Iluluió! \J f0'b () 2014-11-19 v Da.te of admission 2014-11-19 Du.tu of ;1urgcry V 2014-11-27 V Ot\tC of <Ji�chargc 2014-12-02 Wclght \J 3.7 kg V Case catcgory ECMO OPD Timo \; 124:00:00 l; IPPV Vtdic..h .,tion 11.ulmt type 1. DORY, � (prio. 1) 2. or ie arch 2) hypoplasia (prio. Puhnona.ry rutery 3. st,enosis, Branch, Centrał (within t,hc hilar bifurcation) (prio. 3) Proced11rus 1. A ortie arch repair (prio. � 2. PA, reconstruc · 1 (p łasty), Branch, entral (within the hila.r bifurcation) (prio. 2) 3. Conduit reopcration (prio. 3) '( Ont,1 of 1mrg�ry 2014-11-28 Ontt� of db1cha.rgc 2014-12-04 Wclght 3.6 kg Ca::U.' ca.tcgory CPB �·o lJ \J \) 0:>0 0b V31idt,tion ll.ulllK OK rs. valid? OK DIŁlgnosc� 1. heart (prio. (prio. \! \J 1·� . 0:00 �� ( OK Dillgnoscs 2014-11-17 0Ąt.� of cim,t.h J� valirl? OK Datfl of admission g;(o 2014-12-02 V 2014-09-11 AoX Timo AoX 'T'im.t? OK h valid? o.. ,o of birth ,, OH.t.t.1 of doa.th OK Is correct ( ./) Dato of hirtb Hypo tic left � syndr me (HLHS) 1) 2. Vascular ring 2) Proccdures 1. E,0 (prio. 1 I• correct ( ./') cannulation I• not correct ( x) Dlagnosu:1, l. Coarct of amta (prio. 1) r:E . SD, Type 2 (Per 1embranous) (Pararnerubra.nous) ( Conoventricula.r) 2) 3. ASD, (prio. (prio. Secundum 3) 4. Miscellaneous, Other (prio. 4) Proccc.J11rcK � 1. VSD pair, Patch (prio. 1) \{) ASD rcpair, Patch (prio. 2) 3. PA debanding (prio. 3) I• correct ( ./) ·ot correct (x) v 100 \} "" corruct (X) 100 ECHSA Congenital Database - Data Verification Form, XXX 2014 Patlcnt loc}1l ID Pat.icnt local ID Patient loca) lD Opurat,io11 IO Opcr•tion ID Opumtion lD 1001089246 1008679507 XXX_l959 V 1991-07-09 v 011,t,o of adm ission 2014-06-27 V \) DaLc tJ( surgory 2014-11-28 Dato of dischurgo 2014-11-30 \.Vcigbt. 48 kg Cmm <'11tc.1gury CPB CPB Tinrn V \) 245.0 Dat() of death 2014-11-30 IPPV 35:00:00 Validation Rulc5 OK DM,C o( l.Jirth 2010-04-02 Dato of a.dmission lJ V 2014-11-30 v Out<> of dlit<.�łmrgc.: 2014-11-30 Ca.se cuLcgory ECMO CPB Time AoX Timu V V \J Oau� of sur&,cry 15 kg V XXX_l977 2014-11-25 Wcight u 494.0 AoX Timo 1011865079 XXX_l993 Da.tt� of bi rt.h Dato of death 2014-11-30 IPl'V V V DatQ of l>irth 2014-11-18 Datf1 of surg<'ry 2014-12-01 Duto of diftchurl(O 2014-12-06 Wcight Ca,m ca�cgoty CPS Time OK OK 1. Single ntricle, � Heterotaxia ndrome (prio. 1) 2. Cardiomyopathy, End-stage congenital heart disease (prio. 2) 1. Hyp tic left hcart syn<S' o 1c (IILHS) (prio. 1) 2 a.tent ductus a.rteriosus (prio. 2) 3. ASD, Secundum (prio. 3) 4. Coarctation of aorta (prio. 4) 5. Aortic a.reb hypoplasia (prio. 5) I• vt,lld? 1. Trans� 1 .nt, (prio. 1) u Is correct ( v') Heart Is not correct {X) I• valid? Diagno�<lli 1. ECMO \'J;cannulation (prio. 1) 2. elayed sternal closure (prio. 2) Proccdurc:, Is correct, ( v') V Vulidat.ion Rul<:s OK Procud\lrns l) V OR.to of <leath 24:00:00 Q \) 115.0 IPPV V \) CPB OK Oiup;oost�tt \) 3.4 kg AoX Tllno Validrltion Rulos u Datc or admiasion 211.0 u j 2014-11-17 OK Is valld? 101 ls not corr(::ct (X) 101 i ; :•s;;�, Proc(.•d 111·,J� IVS Wio. 1) 1. Artcrial �itch op-eration (ASO (prio. 1) 2. Valve surgery, Other, Aortie (prio. 2) 3. ASD repair, Primary closure (prio. 3) Is corrocL V li, Ii(')t t'Orrcc.t (X) ECHSA Congenital Database - Data Verification Form, XXX 2014 Pł\tinnr. lnc nJ JO Pat.iont loc;,11 ID 101166803 Opcration ID XXX_l979 Da to of blrth 2013-10-23 Datc of admissio11 2014-12-01 2014-12-02 Oo.tQ <1f �mrgory Datc of di:,;clu_1.rg1) 2014-12-09 v u V V Woight 10 kg Ca.se catcgor,v CPB v \) CPB Time 71.0 AoX Timo 29.0 Dato of dcnth IPPV 20:00:00 1011843535 1011869705 Orwratioo ID Oporation ID v XXX_l978 \} V \) Dato <>f hll 'th 2014-11-07 Oatc of admission \) 2014-12-01 03.t.C vf 8t1rgory 2014-12-02 Dat<: of di:;chnrg:1,.' 2014-12-16 Wclght 3.3 kg J \J V Dato of birth Datc of a.dmissio11 2014-11-19 2014-11-19 Daw of surg:1.:ry 2014-12-02 Datc CJf dischurgc Ca.se ca tcgory ECMO AQX Timn AoX 'I'irnc Dat<, of rleath 11:00:00 V ;�i:_,�;�02 06:00:()0v OK OK Oiat1,11oscs DiagrHHlug Diagnosus r rOCtid Itrciq 1. Valvul\Jlasty, Mitral (prio. 1) l• corr�ct � ) I• not com,ct (x) OK 1. Coarctation of a.orta. l 2· VSD, (prio. u 2 erimembra.Type nous) (Paramcmbranous) ( Conovcntricular) (prio. 2) Prucodurcs ion repair, 1. Coar End to � , Extended (prio. 1) Is con·cct'\) V Volidat.iou Rulcs OK 1. Mitral rJ.rgitation (prio. 1) 2. Systemie venous anomaly (prio. 2) \; IPPV Is va.lid'! l!ł vnlirl? b valid? V 3.7 kg CPB Time IPPV ulJ \) 2014-12-02 CPBTlmt1 OK OK XXX-1976 Wclgbt. �� �;i{ Cardi�Jascular V�dkh.,tion llulcs Vttlidat.io11 H.ulc� Pationt locl\l ID Is not correct (X) 102 oplastic left 1. t drorne (HLHS) heart (prio. 1) 2. Vascular ring (prio. 2) Procccłurcs 1. EC� decannulation (prio. 1) h corrc \j ./) I• not rorro<:t ( ><) 102 ECHS A Congenital Database - Data Verification Form, XXX 2014 Paticmt )ocal 10 Pat.icnt )ocal ID 9999800834 1011899346 Oporn.tinu ID OporMion ID XXX_l980 1994-01-05 Dat� of surgt.H'Y Dato of diN<:hn.rgo 2014-12-08 Wcight 71 kg Ca:,c ca Lcgory CPB CPB Time 68.0 AoX Tim,! Da.te of birth 2014-08-05 Datc of udmission Doto of admission \/ 2014-12-03 Ortt-0 nf surgery V 2014-12-03 XXX_l981 Datc of birth V Dn.r,c of 1'drni�ion 2014-12-02 1002717262 Opmat ion IO XXX_l994 J OJ\.tU nf birth Paticnt locn.l ID \I 2014-12-04 01\to of disdmrgc \.) 2014-12-09 u v Wcight 5 kg Caso cutogory CPB V V \J 241.0 V 150.0 IPPV JPl'V V Du.te.) o( dhu:::hurgo 2014-12-10 V Wcight. V CPB v CPB Time 132.0 AoX 'l'lmo Datc of death Dato of death Dat<� of death V O:.tt1� of irnrgt'!:ry 2014-12-05 Caso cotogo1·y V AoX Timo V 'I)i i<+ 51 kg V CPB Time 2000-05-13 2014-0;4r4 V Il'PV 11:00:00 11:00:00 29:00:00 Validation RuleR VRliclation Rulcs OK OK OK l:o1 valid'? Is v1>1id? Validll.tifm f\.ulo� V OK OK OK 1. TOF (prio. i)1 2. Pul monary inNillciency (prio. 2) 1. VSD, M lti le (prio. 1) 2. PFO (p E·o. ) 3. Patent ductus arte · us (prio. 3) 4. Miscellaneous, Other (prio. 4) � '.'''i'�A, (prio. 1) 2. PulmoWy artery stenosis (hypoplasia), Main (trnnk) (prio. 2) 3. Puhuonary steno sis, Valvar (prio. 3) 4. Secundum ASD, (prio. 4) 5. Patent ductus arteriosus (prio. 5) Djngno�:, 1. Valve sur�Othcr, Pulmo�o.1) Procc:dnrci=. ls rorrr.ct ( v') Procc<.lurutt l� nnl, c:orroc:t (X) C <..i vJw , 1. VSD, M�lt1plc, Repair (prio. 1) 2�Uso rcpair, Patch (prio. 2) 1.,orroct( Is not correct (X) fj i Proce-du res 1. PA, (piasty), (prio. 1) isl)I rlecbnstruction Win (trunk) Is correct, ( ../) Is nnL c.orrf!C:t (X) \J 103 \J 103 ECHSA Congenital Database - Data Verification For m, XXX 2014 l'nthm1. lornl ID P,u.lunt lo<:aJ ID 1011900018 1002879855 1011434889 XXX-1996 XXX-1982 Opcrat.ion [D Opcrat.ion ID Oahi of hlrt.h 011tc or hlrth XXX-1995 2014-12-03 Dato of admi�sion 2014-12-03 Oo.Lu <,f !lurgcry 2014-12-08 Ont.c of discłmrgn 2014-12-26 Wulght 3.96 kg J \J 242.0 AoX Tinw \/ 132.0 D:tt.«J of death lPPV �� Wc•l11ht 77 kg Cas(1 <:tlt.egory CPB CPB 't'lmc V \) \J \) 177.0 AoX Time b vałid"f OK Diagnoscg 1. TGA, l� (prio. 1) ASD, ecundum (prio. 2) 2. Pr<><.�ud11ru� 1. Arteri �swit.ch operation (A' ) (prio. 1) 2. ASD repair, Primary closure (prio. 2) b nut. corr<.•ct. (X) \J G 2014-04-23 Dato of admisfłion Dł\l.C orgnrg<Jry 2014-12-0 9 2014-12-10 Da.tu of diNchorgc 2014-12-15 Wuight. 9.8 kg \; u \/li \} �� �PB C\J·diovascular CPB Time AoX Tirtu'l IPPV 09:00:00 I• valld? OK Dia.gnoscs 1. P nary artery � (hypoplasia), stenosis Main (trunk) (prio. 1) Proccdnrc� construction 1. PA, � (płasty), ain (trunk) (prio. 1) ( v') I 1 \j V Va.H<lo.tion Rulci:. No of problems: 1. Please make sur that the body weigh of the following pa cnts are correct. Al , if the they are corr t plea.se check the cl e of birth and the dat(:: of surgery. '" correct Duto of birth Dal.c of death Dllte of d""'·h Valiclation l'ł.ulcs OK \) Datc of di:sc;hnrgc IPPV Vtt..lidatlon llulo,• I• corn,ct ( ..,( Oatc or s1ugory v Cl'B 1'\n·u� \J \J 2014-12-08 2014-12-16 CPB V Dato of admission \) V V C1tsc catc.•gor.v Operation ID 2000-08-08 2014-12-09 \J Pntiont loc,\l l D b uot. correct. (Y) \J 104 OK Is valid? OK Diugnosc� 1. D!} TGA type (prio. l . Aortic arch 2) (prio. hypoplas· 3. Coarctation of aorta (prio. 3) 4. Systemie venous anomaly (prio. 4) failure 5. Conduit (prio. 5) ero�o,� rearctation 1. Ltch aortoplasty pair, (prio. 1 J I• corn,, v') ,� nnt c;.orrnC'.t (X) 104